My oncologist is definately not very good at communication!!!!!
This morning, I received an information pack from my oncologist all about a trial called Persephone. It is a lifestyle study on women receiving 6 months of herceptin versus 12. It is NOT a clinical trial, it is to find out if your life is better having 6 months of herceptin or not.
Luckily, my best friend works for a major pharmaceutical company and has worked on many cancer drugs and read the paper for me and explained it to me. I am not unintelligent, I am just not familiar with "medical speak" - although I should be shouldn't I?
Her advice to me was "don't go on this trial, have the 12 months herceptin". It is what I had decided anyway. This is my life, I don't want to risk the cancer returning do I?
However; it all became clear.... that is why the oncologist was worried about dates!
It was about money as well! Those women taking part in the trial will have their herceptin paid for.
My friend has just departed for TAKE THAT at Wembley Stadium, London. I should have been there but decided I just couldn't cope with the journey to the other end of the country, concert, over night stay then return......
Also: as I type, Mike Peters is climbing Mount Snowdon for Snowdon Rocks 3 - I couldn't make that either!!!
PS: Happy 4th July to all my American Friends