I have just had a meeting with my oncologist and I am starting to have a few concerns about my treatment after chemotherapy and radiotherapy, wondering if anyone out there could help with their wisdom, knowledge, experience.
My tumour was large and a stage 3, hormone sensitive, HER2 positive and of a level that I qualify for the new magic drug - herceptin.
I was discussing side effects of other drugs I may be given and was told that following a year of herceptin I may not need tamoxofin (wonderful news for me but.....) I dont care what I take as long as it keeps me cancer free!
Then the oncologist asks me if I want to have radiotherapy at the same time as my last course of chemo. The radiotherapy means a 100 mile trip each day for 3 weeks and with the way my digestive system has been feeling I don't know if I could cope with it all. So..... I told her I would like the radiotherapy AFTER my chemo finished.
She was then looking at dates and pondering to herself about "getting the herceptin started". She then tells me that we will discuss herceptin at my next appointment in 6 weeks to find out how long I should be on it for. She didn't want to put me on the drug for a year and leave me with a heart condition because there are new studies in Scandinavia which says that even being on herceptin for a short period of time gives the same benefits......
Me? I start to get my paranoid head on this afternoon. Is this a cost driven thing? If I have radiotherapy BEFORE my chemo ends will I get better treatment?
Does anyone out there have experience of this kind of thing?
Sorry to be doing a begging blog today but as I said to my oncologist today "I want to live, I dont want this cancer coming back"